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In this book, Carol Allen Storey has documented the complexities and joys of caring for a child living with a severe disability. The images show families from different socioeconomic backgrounds overcoming daily challenges, making decisions that determine the well-being of their children:from surgery and therapies, to education, employment and housing. Many parents must navigate the complex bureaucracy of publicinstitutions, which demand that they ‘prove’ their children’s need for assistance.